Thursday, January 17, 2013

Lupus Warrior!

So as the New Year takes off with great progression in my life: official member of a new church home, a new relationship, new writing material, finally back to school, amongst other wonderful things; lupus has once again taken it's brutal attack on me. Just when shortly after my doc visit and with comforting reports from him in regards to my discontinuation of medication, I found this.......
Woe Is Me!!!! I was so glad that my hair had stopped falling out finally!! And then this discovery broke my heart. I don't know why, but I hadn't noticed my hair was still falling out so much. I've only noticed the amount coming out in my brushes. Once I started looking for more spots, I realized the whole top circumference of my head is thinning out... I had stopped taking Biotin for a while, however I've gotten back on a stricter routine of taking all my vitamins without missing. I was suggested to see a dermatologist to get a topical steroid cream for it. But if I can help it, I'd like to try all natural remedies. So back on to research!!! It's truly discouraging to feel that when you have finally gotten things a bit quiet and in control, this miserable disorder decides to attack yet again. I can cry all I want, but it doesn't do me any good other than release some frustrated emotions. Its incredible to watch my body go from relief of one symptom (such as less fatigue = more energetic) to the appearance of another completely different symptom (hair loss & rhino skin spots). It's a constant rollercoaster. It's challenging because considering my medical history, the last thing I really want to do is resort to poisonous medicine. Vitamins are my safe haven, but I wonder, what else can I add to my regime? My search goes on in looking for alternative remedies and to seek out the natural way I have not tried yet.
I know that the start of this is organization with myself and my schedule.. My one on one time with myself. Which is something I've begun to become more disciplined with. Along with that, I simply take to my support team. Those people who hold me up when my struggle threatens to make life and cures hopeless. Even the social media has been inspiring to me as I find the magic of Hashtags connected to words like #LupusWarrior, #LupusFighter, #LupusAwareness, etc.
This year, I plan to attend events and participate more in the fight against lupus. I need to be more aware, to spread the awareness, to make my mark, my dent on this life controlling disorder... I need to find another way to fight back and harder than just maintaining!!! I ask you all to join in, whether it be by wearing purple, or spreading the word, or even asking questions and gaining information! It's become an epidemic and something needs to happen. Something needs to change!!!


Thanks for taking this journey with me!
God Bless & Be Well!


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